Extra Loved.

For years we have been praying for a child to be part of our beautiful little family.

Then God blessed us with a boy that was made up of a little bit of mommy, a little bit of daddy, and a little bit extra.

And that little bit extra was the biggest blessing of all.

Be.

19 May 2021. Open Heart Surgery 2.0 Be strong little one, our God has given you all the armor you need to fight. Be brave little one, you are given...

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Feeding Tube Freakout

Today was the first time Stephan and I cried together. I have a rule you see, we are both allowed to have our moments to feel defeated, to cry, to...

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Blood Tests

Being Stephan’s mom has been an absolute blessing and I feel incredibly lucky to have him. But it often comes with challenges that no other friend or family member of...

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Homecoming

It was on the morning of the 17th of December 2020 when we received the call. Stephan is ready to be discharged. It felt unreal. Our son is 8 weeks...

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But God

Stephan’s journey had reached a lot of people by the time he was transferred to Sunninghill Hospital for his first surgery. I can’t even count the amount of messages, calls...

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Smooth Operator.

Babies born with Down syndrome often are also born with heart defects. Stephan was born with a Large Ventricular Septal defect. On the 25th of October 2020, one day after...

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The Final Countdown

After finding out that Stephan is going to need surgery to temporarily help his heart heal as much as it can, we had to start planning the “Groot trek” (big...

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NICU Visits

Because of the COVID pandemic dad and I were only allowed to visit for 1 hour a day, between 4 and 5pm. We lived for this hour, everything we did...

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Pump Up The Jam

From the first day Stephan was born I started expressing breastmilk for him. Being born at 35 weeks, his cheek muscles and sucking reflex was not fully developed at birth,...

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Trisomy Twenty What?

On the 29th of October we received the confirmed diagnosis of Down syndrome for Stephan. Naturally we were devastated at first. Neither of us had ever known anyone with Down...

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Now What?

Once André and I were told that the Down syndrome diagnosis was confirmed we were kind of left in a spin. Are we ready to tell everyone? Who would we...

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The 5 Stages of Grief

The day after we received the test results, we made an appointment with a dear friend of ours who happens to be the pastor that married us. I reached out...

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1 in 1 000

During pregnancy we did all the screening and tests needed to ensure that everything was fine with Stephan. With both screenings we got a “Low risk” result for any abnormalities....

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