Month: November 2020

The Final Countdown
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The Final Countdown

After finding out that Stephan is going to need surgery to temporarily help his heart heal as much as it can, we had to start planning the “Groot trek” (big move). The Doctors who are able to perform Stephan’s surgery are based at a different hospital which means that he needs to be transferred via […]

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Trisomy Twenty What?
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Trisomy Twenty What?

On the 29th of October we received the confirmed diagnosis of Down syndrome for Stephan. Naturally we were devastated at first. Neither of us had ever known anyone with Down syndrome, never known any parents with Children that have Down syndrome. We were already feeling quite isolated in our parenting journey as we don’t have […]

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The 5 Stages of Grief
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The 5 Stages of Grief

The day after we received the test results, we made an appointment with a dear friend of ours who happens to be the pastor that married us. I reached out to her the previous day feeling completely overwhelmed and alone. Until this point we had not told anyone that Stephan has Down syndrome, let alone […]

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